Thursday, February 26, 2009
Last Tuesday night Lukey was running temp of 101.8 (ER if >99 for transplant and >100.4 for oncology). So, I took Lukey to ER at Fairfax. There were loads of people at 10pm at ER and the wait was excruciating. Anyway, we checked-in to the floor around 12.30am and Lukey was able to get some sleep, finally. We're still in the hospital, as the temp spiked up last night again and his ANC (white blood count) is low. We're praying to get home this weekend.
We'll update you soon. Hope you and your family are doing well. Blessings!
Saturday, February 21, 2009
Next week is chocked full of appts for Lukey and 1 for me. TWINS...I think I am in denial..still in shock...I have to look at the US picture to really believe it. Levi is very excited. He has been such a big helper to me with Lukey. The other day he wanted to rock Lukey in the chair like I rock him. I think he didn't realize Lukey weighs 25 lbs. I almost couldn't see Levi with Lukey on his lap.
We ask for your continued prayers as we enter the last part of his chemo. His AFP needs to be low. All his scans need to be clear. And we pray for healing over the hearing loss. He will have an in depth study done in March to see exactly how much hearing has been lost. I pray that all goes well and he can have his central line removed in the next few months. I also ask for strength, strength for all of us. We will all rejoice together very soon....Thank God for that!
Tuesday, February 17, 2009
Please pray for strength for Lukey to endure this last round of chemo. Also, please pray that this monster is forever gone from our lives. As always, we appreciate you rallying around our little trooper and we pray that your life will be blessed for your generosity.
It is with great sadness I read the story of Sarah, who passed away after a brave fight against HPB. Please pray for her family. We honor Sarah's life today.
Wednesday, February 11, 2009
Saturday, February 7, 2009
We prayed for help during Jen's pregnancy --with intensive home care, dr's visits, hospital stays, etc, and we are so appreciative of the answered prayer. My aunt (dad's sis), Mercy, is flying in from Sri Lanka and will stay with us until after the twins' grand entrance in June. It was a long process for her to get the visa but thanks to Senator Webb's office for sending a letter of recomendation to US Consulate in Sri Lanka. Also, I want to thank our neighbors Bob and Madeline (The Sullivans) for contacting all the local senators on behalf of us. Thank you to Mathiasz's for guiding us throug the process. Most importantly, I want to thank Aunt Mercy's church (Moratuwa, Sri Lanka) for lifting up Lukey and praying for this trip. God answers prayers and He's faithful.
Trust in the LORD with all your heart and lean not on your own understanding, in all your ways acknowledge him, and he will make your paths straight. Proverbs 3:5-6
Today Lukey starts 6th and last round of chemo per the protocol. Please pray that this is the LAST chemo cycle period. We need God's intervention to get all clear after this. He's AFP is in 60's and please pray that today's reading will trend downwards. AFP rules HBP cancer, and we need this reading to be as lowest as possible and stay low (less than 10 or so) for the next 5 years to get the official "HEALED." We know and believe God has already healed Lukey and no matter how bumpy the road is, our trust is in God. We will be steadfast and thank God for the chance to fight for Lukey's life, no matter how hard the journey has been or will be.
Please pray strength for Lukey's body to endure the chemo and NO side effects. Also, please pray that this chemo will have no effect on his new liver/functions.
Thank you for stopping by to read about our journey. We are praying for you and your family. During this economic uncertain times, we pray for your storm and know that God will see you through. Your prayers saved Lukey's life and I know God will reward your love and faithfulness.
Blessings to you and your family.
Friday, February 6, 2009
Tomorrow Jen has a US at Loudoun Hospital. Big day!! We get to find out about our next miracle. Please pray with us that God's will be done and Jen's wish is fulfilled :) I'll let you know what her wish is after we find out tomorrow!
We have a hearing test tomorrow at Fairfax. And on Sat we will be admitted to Fairfax to start the final round of chemo.
We need your focus and urgent prayers for
- Good AFP reading. Lukey's tumor marker had spiked the last week from 20 to 60. We need this to be under 20 to be at comfort that cancer is history.
- No more side effects from chemo.
- Lukey's mind at peace. God's touch.
- Strength for Jen and me
- Covering for Levi
Every time we asked prayer, someone prayed and we felt the power of God's touch. Please continue to pray for our journey. We are forever grateful for your prayers and support. Thanks for coming alongside this long windy road. We pray that you and your family be blessed for your love and faithfulness.
Monday, February 2, 2009
Lukey, thoroughly enjoying himself smashing the cake.
I know I've said this a million times, but thank you to everyone who helped us get this first year mark. We are looking ahead to many more.