Wednesday, June 24, 2009

Lukey says Farewell to his favorite Dr.

Dr. Weil, Benjamin (her son), and Lukey
A very fond farewell to Dr. Weil. Lukey's oncologist is leaving Children's and heading to NIH. We are going to miss her. On August 5, 2008, we were told Lukey had a tumor in his liver. Dr. Weil was the Dr that met us when we first showed up at the hospital in a state of shock and fear. I am totally choking up as I write is hard going back and remembering. She has been Lukey's primary oncologist since day 1. Dr. Weil always made herself available to answer our many thousands of questions no matter the time or day. Though she is leaving Children's...she will never be able to get away from us :) We know her cell phone number...hahahaa. We are definitely going to miss her, but intend on keeping her updated on Lukey's progress. We are just waiting for the AFP to come back to see if the line can be removed. I hope everyone is having a wonderful summer so far...I hope to get out to enjoy it somewhat this year.

Dr. Weil and Lukey

Lukey walking!!! He is so proud of himself

Lukey loves the babies...loves to poke them in the eyes.

Who's that? He looks like me!

Wednesday, June 17, 2009

Introducing Joshua Liam and Jacob Lael

Our boys were born May 29th at 11:10pm and 11:11pm. Joshua was the bigger of the two at 6 lbs 1oz and Jacob weighed 5lbs 9 oz.
Proud Daddy!!

Exhausted Mommy!

Joshua Liam Fernando

Jacob Lael Fernando

Heading Home

Big brother Levi

My two angels

Nana and her new grandsons

Having twins makes you remember the days of having one newborn and laughing about how hard we thought it was...hahaha. All they do is eat and cry. Some days I don't have time to even eat. I have started drinking caffeine again after almost two years of no coffee and such. It is necessary for survival. I can't believe the amount of laundry we do around here. There is no way I would be able to keep up right now without Mercy here. She has been a huge help. I took the twins to the Dr. on myself...yeah I totally ROCK!! The double stroller is like pushing a stretch really have no idea of it's length until you try getting into elevators and through doors. The boys are growing well...Jacob has actually passed Joshua in weight, which is funny because he was the smaller of the two.

I went to the Dr. yesterday for a incision check and follow up. He told the path lab results came back on the placenta and the boys are actually identical twins. Initially they said fraternal. I don't know who to believe...I guess we'll see. They do look identical now and they both have B+ blood types which I thought was interesting. They do have extreme cuteness in common. We are trying very hard to just enjoy these days...they go by so fast and these are our last ones. We might complain now about losing sleep now...what about when they are teenagers...we will long for the days when they just eat and sleep and poop.

Lukey will have another blood test this week and his AFP results will determine the removal of the central line. They have taken him off the steroids now...YAY!! He is also off the prevacid...two more meds down... and about four or five more to go. The big news this week is...Lukey has started walking!!!! He just laughs the whole time too...he tries to go really he wants to run. He starts speech therapy next week and will have a lot of follow up scan in the next couple of months. We are still trying to get him to drink more. I am supposed to put his new ng tube in myself...they gave me a stethoscope at Georgetown and showed me what to listen for when testing the tube....Lord have mercy...I can't wait to be done with all this. I'll try to get some pictures of Lukey walking to post.

Levi had his 5th birthday and graduated from Pre-K all on the same day!! It seems like not long ago I was feeding and rocking him. We are truly blessed with all these boys.