Thursday, November 27, 2008
"The King will reply, 'I tell you the truth, whatever you did for one of the least of these brothers of mine, you did for me." Mat 25:40
We wish you a day of blessings and much peace. May the Lord make His face shine upon you and your family.
Monday, November 24, 2008
Just as Ben was taking everything to the car, the phone rang again. They said don't leave just yet, there has been a small mistake. We were not the primary recipients of the liver, we were the back-up to the primary recipient. They said if the primary refused the liver for whatever reason, then it would go to Luke. Well...they wanted the liver. We now know that we are next up for a matching liver. Ben wanted me to go back to bed and try to get some sleep. I could not fall back to sleep. My mind was going 100 miles a minute.
It did give me a heads up though. I am spending the day getting all our things in order for a long hospital stay. The laundry is done, the carpets are vacuumed (thanks to Gilian), and the stack of bills and things on my desk are almost gone. Next time they call....I will be physically ready..although not emotionally.
We have started a fund for Luke called Luke's Hope. You have probably seen it on the sidebar. I honestly don't know how people without insurance can make it through these types of things, because even with insurance it is a struggle. We will be doing some fundraising things in the future. Thank you to my brother for doing his Benefit Boot Camp and raising money for Luke's Hope. Thank you to all you who have given to Luke's Hope. We are so very, very thankful. Luke and so many other children are fighting cancer everyday. Some have been fighting for years. These kids are so brave and inspiring. Watching them will make your worse day seem like a walk in the clouds. I cannot complain about anything. We appreciate all the prayer and support we have received. Thank you all so much.
Wednesday, November 19, 2008
Levi's Super Sib trophy for being a great big brother to Luke
Levi had a Thanksgiving program and lunch at his school today
Wednesday, November 12, 2008
We went to the clinic and to Georgetown University Hospital on Tuesday. We went for Luke's transplant evaluation. So here's the deal. The tumor has gotten much smaller, but is still on the major vessels. These surgeons could remove the tumor no problem, but due to the location of it there is a high risk of spreading to other organs. I did not realize that because it is on the vessels, the vessels can carry the cancer cells all over his body. The recommendation is a total liver transplant. This will carry many lifetime challenges for Luke, but we believe it is the best decision. The Dr. said that many times they have done a resection, just to have the cancer come back less than a year later. It is much harder to have a transplant after having a resection. We will meet with the surgeons on Tuesday and Luke will go on a list for a liver. We are not sure how long we will have to wait, so meanwhile he has to start another round of chemo. I can't be a living donor because of the pregnancy and we found out that Ben can't because his blood type is B and Luke's is O. My brother has offered to give part of his liver, the offer just chokes me up. It is a gift of life, and just the offer means so much to us. The Dr's prefer to do an entire liver because partial liver transplants are trickier, but we don't want to wait for too long. It's something we really have to think and pray about.
Luke will be on autoimmune suppressants for the rest of his life, but be able to live an otherwise normal life. These Dr's don't candy coat anything for you. They just tell it like it is. If death is a risk...they say so. The Dr. told us several cases of the child dying, which didn't make me feel good, but they want to make sure the facts are known. I'm already scared, I don't need to know anything else. I struggle to make sense of all this. I don't know why God chose Lukey to go through this, but I do know that something awesome is going to come out of it. Job asked his wife if we are to accept only the good things from God and not the bad. He lost everything: family, livestock, his health and yet was still able to say "The Lord gives and the Lord takes away, blessed be the name of the Lord". I want to have that attitude.
Wednesday, November 5, 2008
Lukey and Levi-Best Friends
A little bit of yard work
Remember how fun this used to be?
Please remember us tomorrow in your prayers. We believe that the tumor has moved away from the vessel. Thank you so much for everything. Love to you all!