Wednesday, November 19, 2008

An 11:59:59 God

We have just passed 100 days into our journey. We met with the transplant surgeon at Georgetown this week. He will be putting Lukey on the list for a liver. Meanwhile, my brother is going to go through the rigorous testing process to be a donor. They want to hold off on the chemo to see if he will get a liver in the next few weeks. They can only hold off the chemo for two-three weeks maximum. If he has to do another round, it will be at least three weeks before he can have the surgery. We are also waiting for a second opinion from Pittsburgh. I still believe God can step in and do a miracle. Dr. Jeffers preached the other morning that we serve an 11:59:59 God. He can step in at the last nanosecond and perform a miracle!

Levi's Super Sib trophy for being a great big brother to Luke
Levi had a Thanksgiving program and lunch at his school today

Lukey has been putting weight back on. He is eating really well and is back up to 9kg. He has lost all his eyelashes and most of his eyebrows, but seems to be clinging on to what hair he has left. He is also extremely active. Diaper changes look like wrestle mania and he barrel rolls across the floor.
Today Levi tried to take a toy out of his hand and he let him have it! I don't know what he was yelling, but it didn't sound good. At least he can stick up for himself :o) I love these days that seem like back to normal. I wish it could just stay like this. I wish the cancer would leave our lives as quickly as it entered.
We have learned so much in the last 100+ days about ourselves, about God, and about others. We probably still have a lot to learn. There are so many good people surrounding us. People praying, people taking care of Levi, people bringing us meals, and so many other things. Each and everyone is important to us. We are very blessed indeed. My song these days has been Casting Crown's I'll Praise You In The Storm. I always think the line "my strength is almost gone, how can I carry on if I can't find you". I've been told I am a strong person. I am sooooo not strong. I never volunteered for this. If I had a choice I would have turned my tail and ran and hid until it was all over. As a mom, you feel very defensive and protective about your babies. My animal instinct wants to hold Luke so that nothing can see him and rip to shreds anything that comes to harm him. I want to grab cancer by the throat and choke the life out of it. Whew..that took some energy to write. But I can't do that physically, so I speak to it. I speak the word of God and I claim healing. I speak the word over Luke and I rebuke cancer in the name of Jesus and that is more powerful than me choking it to death. We press on. We'll make it through. My God is an 11:59:59 God. So, what time is it?
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